Currently we are pursuing many avenues to raise our fundraising levels. It all starts at the ground level and in small communities. We can then expand our operations and start to fundraise on a larger scale. There are two current and ongoing fundraisers that we are pursuing. Any ideas on additional fundraisers would be appreciated.

Urgent Projects

Mike Ikard

Fundraiser Co Coordinator

Phone: 704-804-4914

Our Mission



Chiari Fund Is In Desperate Need Of Help

We are always in need of help in any form. We are currently looking for state level help as well as committee Any amount of help is appreciated even if it be for one day. Let’s all get together and help those in need!! For more information please Contact Us

Chiari Fund is a 501(c)(3) nonprofit as determined by the IRS. Click Here for the determination letter.

important facts and data


for a cure

Amanda Johnson

Executive Vice President

You Can Now Text To Donate...Text the word "chiarifund" to the following number: 843-203-8836

Reach Out

Work with members in the Chiari community and make a difference.


those in need

Chiari Fund is a nonprofit organization that is dedicated to helping those in need who have Chiari and/or Related Disorders. Find out how you can contribute to the future of someone in need through donations of money and time. With Chiari Fund, it is more than just giving money, we also need those who can help and donate time. .

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What is more rewarding then to help those in need and less fortunate. I know from my personal relationship to this organization that it has helped me in so many ways. Finally, it gave me some purpose in life. So, the call has been made. Come and help us so we can continue the mission of Chiari Fund. Any amount of time can help.

Billy "Joey" Rowe

President and Founder

Meet Our Team

We are a 501(c)(3) nonprofit as provided by the IRS. This means that any cash donations are tax deductible We are registered with NC as a non profit and have a Tax ID. Please consult a tax professional for advice.  .

Join Us

  • Chiari Affects 1 in 1,000 People
  • There Is No Cure For Chiari
  • There Are Very Few "Experts" In The Field
  • There Are Many Related Disorders

The mission of Chiari Fund is to serve patients with Arnold Chiari Malformation and Related Disorders by providing monetary and assistance based on need for medical and non-medical expenses. Our hope is that community of patients and their families have the means and support necessary to continue their care.

Barbara Rowe


Find your inner power by helping others